Laci & I took off Wednesday 15th for Philly and had a nice drive there. Tolls were close to $30. Eeekkkk!! Then we stayed at the Radisson where CTCA always puts us up. Thursday was full of appts and then my chemo at 4:00. I have so far tolerated it very well! We ate at CTCA and had some good stuff. I love the creamsicle smoothies they make with protein added.
The pain docs wanted to admit me to adjust my pain pump. "Just for 24 hours" she said! Ha, I fell for that last time and ended up being there 2 weeks. And I wasn't really having the bowel obstruction pain that I had complained about the pump not keeping me comfortable. My sacral pain has been controlled. So she was happy with the fact that I would consult my "home" pain management team as soon as I got home. I will call them Monday.
Then we returned home Friday 17th. We left at 7:15am and got home around 4:30pm. That's not too bad! Overall it was a great trip!
Bad news while I was gone. My Mom has been having back pain for the last few weeks and after CT's and MRI's they found a tumor on T3 vertebrae. Dr. Chopko wants to do surgery to remove it in the next couple weeks. She's having a lot of pain and she is allergic to about 6 different pain meds. Doc put her on Fentyl patch and so far it has helped to bring her pain from 8 to 3-4 (on 1-10 scale). So please keep my Mom in your prayers as well.
Jen Hageman has planned a cookout for my Ashland friends today at 5pm at our house. Can't wait to see everyone!! Have a great wekend all. Happy Father's Day too!
Saturday, June 18, 2011
Philly again
Posted by Linda Vaughan at 1:50 PM
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It's 2010! Time to Reflect...
Almost 18 months cancer-free...how long will it last? Such an aggressive cancer, this damn Leiomyosarcoma! Every CT/MRI I have had since my completion of radiation in August 2008 was VERY stressful. Even when I didn't realize it, "SCAN"XIETY loomed in the back of head. Knowing that I had a 50% chance of the cancer returning. Wondering if NOT having chemo back then was the right path. Since my doc's hadn't dealt with many sarcomas, did they really know the BEST treatments?
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The last year and half has brought me so much joy and contentment. To be a GRANDMA! Wow. I love it! To become so much closer to my family. My sis is my best friend now! My husband and I couldn't be any closer. I get to see my daughter and her family every week when I go to babysit my little Maxton. My stepdaughter moved in with our youngest grandson, Marcus, for 6 months. He is a little angel. My Mom has been so much help to me through all my health issues. My stepdad and I have become closer than I ever thought possible. He has been down the cancer road as well. My Mother-in-law has moved closer to us and our relationship has grown. And then I began working at Samaritan and have some wonderful friends! I love that place so much! It's worth the 45 minute drive.
I HAVE A WONDERFUL LIFE!
And I know how to live it...by the seat of my pants! :)
Life should NOT be a journey to the grave with the intention of arriving safely in an attractive well preserved body, but rather to slide in sideways, chocolate in one hand, a beer (or tequila) in the other, body thoroughly used up, totally worn out, screaming "woo hoo, what a ride"
**HEY! DON'T FORGET TO GO TO "OLDER POSTS" JUST ABOVE THIS ON THE RIGHT. LOTS OF COOL INFO THERE TOO! YOU DON'T WANT TO MISS ME WITH TIM MCGRAW!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
The last year and half has brought me so much joy and contentment. To be a GRANDMA! Wow. I love it! To become so much closer to my family. My sis is my best friend now! My husband and I couldn't be any closer. I get to see my daughter and her family every week when I go to babysit my little Maxton. My stepdaughter moved in with our youngest grandson, Marcus, for 6 months. He is a little angel. My Mom has been so much help to me through all my health issues. My stepdad and I have become closer than I ever thought possible. He has been down the cancer road as well. My Mother-in-law has moved closer to us and our relationship has grown. And then I began working at Samaritan and have some wonderful friends! I love that place so much! It's worth the 45 minute drive.
I HAVE A WONDERFUL LIFE!
And I know how to live it...by the seat of my pants! :)
Life should NOT be a journey to the grave with the intention of arriving safely in an attractive well preserved body, but rather to slide in sideways, chocolate in one hand, a beer (or tequila) in the other, body thoroughly used up, totally worn out, screaming "woo hoo, what a ride"
**HEY! DON'T FORGET TO GO TO "OLDER POSTS" JUST ABOVE THIS ON THE RIGHT. LOTS OF COOL INFO THERE TOO! YOU DON'T WANT TO MISS ME WITH TIM MCGRAW!
1 comments:
News sounds good, Linda...hope you are having a GREAT time with your ICU friends right now!!
Will keep you AND you mother in my prayers!
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