From Laci, Linda's daughter:
Linda is back at home now. She has a daily schedule in order to control her pain. All is going well so far so we hope that continues. We're looking forward to February 3rd when they repair the fistula and give her a colostomy bag. Fingers crossed that this procedure cuts down the pain.
Linda WAS on the Avastin in the clinical trial. Since being "unblinded" in the study she has not been on any chemo. Unfortunately, she can not be put back into the clinical trial to recieve the Avastin anymore. But it would be possible for her to go back on the Gemzar & Taxotere later if we decide to go that route.
Being off the chemo drugs have allowed her body to start to heal. Specifically the port sites. She had to have the port in her left forearm taken out as well because it was not healing. arrrgggg!!
She only had the wound vac on her chest site for one week because it was so painful to change the dressing.
We'll keep you updated on anything new that comes up. Thanks for all of the thoughts and prayers you are sending!
Thursday, January 27, 2011
Back at home on a great schedule
Posted by Linda Vaughan at 10:24 PM
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It's 2010! Time to Reflect...
Almost 18 months cancer-free...how long will it last? Such an aggressive cancer, this damn Leiomyosarcoma! Every CT/MRI I have had since my completion of radiation in August 2008 was VERY stressful. Even when I didn't realize it, "SCAN"XIETY loomed in the back of head. Knowing that I had a 50% chance of the cancer returning. Wondering if NOT having chemo back then was the right path. Since my doc's hadn't dealt with many sarcomas, did they really know the BEST treatments?
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The last year and half has brought me so much joy and contentment. To be a GRANDMA! Wow. I love it! To become so much closer to my family. My sis is my best friend now! My husband and I couldn't be any closer. I get to see my daughter and her family every week when I go to babysit my little Maxton. My stepdaughter moved in with our youngest grandson, Marcus, for 6 months. He is a little angel. My Mom has been so much help to me through all my health issues. My stepdad and I have become closer than I ever thought possible. He has been down the cancer road as well. My Mother-in-law has moved closer to us and our relationship has grown. And then I began working at Samaritan and have some wonderful friends! I love that place so much! It's worth the 45 minute drive.
I HAVE A WONDERFUL LIFE!
And I know how to live it...by the seat of my pants! :)
Life should NOT be a journey to the grave with the intention of arriving safely in an attractive well preserved body, but rather to slide in sideways, chocolate in one hand, a beer (or tequila) in the other, body thoroughly used up, totally worn out, screaming "woo hoo, what a ride"
**HEY! DON'T FORGET TO GO TO "OLDER POSTS" JUST ABOVE THIS ON THE RIGHT. LOTS OF COOL INFO THERE TOO! YOU DON'T WANT TO MISS ME WITH TIM MCGRAW!
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The last year and half has brought me so much joy and contentment. To be a GRANDMA! Wow. I love it! To become so much closer to my family. My sis is my best friend now! My husband and I couldn't be any closer. I get to see my daughter and her family every week when I go to babysit my little Maxton. My stepdaughter moved in with our youngest grandson, Marcus, for 6 months. He is a little angel. My Mom has been so much help to me through all my health issues. My stepdad and I have become closer than I ever thought possible. He has been down the cancer road as well. My Mother-in-law has moved closer to us and our relationship has grown. And then I began working at Samaritan and have some wonderful friends! I love that place so much! It's worth the 45 minute drive.
I HAVE A WONDERFUL LIFE!
And I know how to live it...by the seat of my pants! :)
Life should NOT be a journey to the grave with the intention of arriving safely in an attractive well preserved body, but rather to slide in sideways, chocolate in one hand, a beer (or tequila) in the other, body thoroughly used up, totally worn out, screaming "woo hoo, what a ride"
**HEY! DON'T FORGET TO GO TO "OLDER POSTS" JUST ABOVE THIS ON THE RIGHT. LOTS OF COOL INFO THERE TOO! YOU DON'T WANT TO MISS ME WITH TIM MCGRAW!
5 comments:
Please know that prayers are always coming your way!!
I echo Donna's thoughts...I don't comment often, but I read the blog and I'm always hopeful Linda's feeling stronger, and more pain free every day. All of us at SamHo surgery are pulling for her!
Delete shis text plz. Sorry
Linda, will be praying for you on the 3rd that all goes well & according to plan.
Linda I know you wanted to go to Mardi Gras and I prayed you would make it this year. May the celebration of Mardi Gras be yours each day in spirit.
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