Graphics by Jen Hageman. Photo by Liz Leisure.

Thanks girls!!

Friday, March 18, 2011

SORRY...I need to keep up here huh?

Since I was discharged home from OSU on February 5th things have been wonderful! I had the colostomy placed on my right upper abdomen area and it works fabulously! LOVE IT!! I bet most people aren't EXCITED to have a colostomy bag hanging around but it has been a God send for me. My tailbone & butt pain have gone from a 9 (on 1-10 scale) to a 2. Some days I barely have any pain!!!! Thank you God!!! I do still take my round-the-clock methadone but have rarely needed anything else for breakthrough pain. Wahooooooooooooooo....

Visit with Dr. O'Malley on March 2nd-
So Gary, my Mom and my daughter went with me to this appt. We thought we might have to make some serious decisions about the next step, which could include surgery, but Doc put me on a hormone Aromasin instead. I don't know a lot about it but he says there have been many studies where this drug has kept tumors from growing. So, I sure was glad he wanted to try something else besides surgery. NOT ready for that yet!!

So home I go, feeling great and excited that I get to enjoy some nice weather! Now that I am on less pain meds I have my senses back and can now drive again and go places! Thank God, that was getting real old! My next appt will be June 1st. I will have a CT done the week prior to that and then we will see what the options are at this point.

I also have great news about my old port sites! The one on my chest is completely healed and the one on my left arm only has a pin size hole. So those no longer cause me pain either! :)

As for my Mom and her cancer, her liver tumor grew 1cm this time so Dr. Ghaney is sending her to an Interventional Radiologist. She is now off her chemo also. The Riverside doc will place radiation beads in her liver and try to zap it that way. Oh course she has been upset about this. Many prayers for my Mom also. Thank you!!!

1 comments:

Donna said...

PTL...prayers do work, huh?Keep up the good work!!!

It's 2010! Time to Reflect...

Almost 18 months cancer-free...how long will it last? Such an aggressive cancer, this damn Leiomyosarcoma! Every CT/MRI I have had since my completion of radiation in August 2008 was VERY stressful. Even when I didn't realize it, "SCAN"XIETY loomed in the back of head. Knowing that I had a 50% chance of the cancer returning. Wondering if NOT having chemo back then was the right path. Since my doc's hadn't dealt with many sarcomas, did they really know the BEST treatments?
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
The last year and half has brought me so much joy and contentment. To be a GRANDMA! Wow. I love it! To become so much closer to my family. My sis is my best friend now! My husband and I couldn't be any closer. I get to see my daughter and her family every week when I go to babysit my little Maxton. My stepdaughter moved in with our youngest grandson, Marcus, for 6 months. He is a little angel. My Mom has been so much help to me through all my health issues. My stepdad and I have become closer than I ever thought possible. He has been down the cancer road as well. My Mother-in-law has moved closer to us and our relationship has grown. And then I began working at Samaritan and have some wonderful friends! I love that place so much! It's worth the 45 minute drive.

I HAVE A WONDERFUL LIFE!
And I know how to live it...by the seat of my pants! :)

Life should NOT be a journey to the grave with the intention of arriving safely in an attractive well preserved body, but rather to slide in sideways, chocolate in one hand, a beer (or tequila) in the other, body thoroughly used up, totally worn out, screaming "woo hoo, what a ride"

**HEY! DON'T FORGET TO GO TO "OLDER POSTS" JUST ABOVE THIS ON THE RIGHT. LOTS OF COOL INFO THERE TOO! YOU DON'T WANT TO MISS ME WITH TIM MCGRAW!